For patients and care partners with myositis, (inflammatory myopathies) to connect, encourage, educate and support one another. We discuss our challenges, triumphs, emotional and mental health, and gratitude. Come as you are, be authentic and know you are not alone. Nothing discussed is medical advice. Be sure to also register for free MSU membership, https://UnderstandingMyositis.org
Myositis Patients and Care partners welcome: This club is for those impacted by the rare diseases generally referred to as myositis. Whether a patient or care partner, you are welcome here.
A Positive Space, filled with love: We wrap our club in love, kindness, and respect for everyone. We do not tolerate discrimination, hate speech, bullying, or harassment.
General Guidelines: We ask you keep your mic muted when not speaking. Please do not interrupt others when they are speaking. Mods will take lead and decide how the room runs. NO recording.